“And everybody know the story of David and Goliath But this is bigger than triumph This is for the warrior, this is for you and I This is for euphoria, give me a piece of mind God is recording … Continue reading
I’ve been in a depressive episode for nearly 8 weeks. The decline has been gradual. There have been good days scattered throughout, but I’ve been edgy, tense, fatigued….my mind has been too loud some days, eerily silent during others. I’ve been crying off and on in my bathroom to hide my breaking from my kids…in my car as I drive from one errand to the next. I’ve had to shift to auto-pilot to just get through hard moments, root myself in detachment to keep from getting swallowed up by the stress. I’ve spent the last two weeks cycling rapidly between hypomania (marked mostly by agitation and a mind packed with too many thoughts), and a dragging depression that swallows me up and sends me into its belly for a few moments then spits me back out into the sun and air where I can breathe again. And then everything’s still and quiet…I feel “normal” and then the cycle repeats itself hourly, daily, weekly….and so it’s been for nearly 2 months now. Rinse. Settle. Repeat.
I’m still in that critical postpartum window. I just weaned nearly a month ago. My body and hormones are in flux and adjusting as a result. I hate it.
Stress is both motivating and crippling for me. I can handle 10 things going on all at once with ease. It’s once the 11th shows up demanding my attention that my mind starts to split and scatter off into darker corners. I think about my life these days and chide myself with all kinds of “should” statements for feeling and being overwhelmed by all I manage on a day-to-day basis: baby is teething & raging, middle child with special needs, oldest was just diagnosed with ADHD and his enthusiasm for school has waned significantly, trying to overhaul our home and parenting lifestyles to accommodate and support their needs (like increasing structure and making our home more sensory friendly), supporting my husband while he deals with stress at work. New therapy schedules, trips to the pediatrician, and comprehensive psychometric testing have dominated our lives over the past month. Up ahead there is more testing to be done, and meetings with the school district to discuss accommodations for Brennan and evaluations and placement for Alex who is gearing up for preK this fall…
It’s not all stressful. I’m involved in birthing great projects. I’m taking my mom’s advice on avoiding burnout by feeding my spirit so I don’t fall prey to losing myself, you know? I’ve joined writing & art communities online, I’m painting at 11pm, I’ve signed up for retreats and writing eCourses, done a couple of write-ins with groups, and I’ve done a juice cleanse to try to reset my body and mind. I’m re-reading Daring Greatly by Brene Brown as well as books on painting, sensory processing disorder, creativity, and feminism. I’m trying to find my way here still, in this space as far as my writing is concerned. I’m trying to learn how to embody all the parts of myself that have come alive over the past few years-artist, writer, advocate-in the midst of the daily demands on my person and time as a mother and wife. I’m trying to bloom where I’m planted. At 31, it’s still a stumbling process though.
I’m searching for my flow amidst the rhythms, rocking and swaying as the ebb and flow of my life’s current carries me throughout my days. But the stress of everything gets triggering and I find myself cycling with the ebb and flow as a result sometimes. That’s when my knees buckle and my head spins. My chest constricts and my brain starts to feel like it’s suffocating. My grip gets weak. Fatigue sets in and my steps forward get heavy. Taking care of myself gets harder, and usually becomes the last checked off item on my must do list-if it’s checked off at all. I end each day feeling as though I have no safe place to come up for air and just process my thoughts, fears, and anxiety…I end most days feeling unsettled and bottled up, stuffed to capacity and as I close my eyes to sleep I’ve found myself starting to pray like Jabez, asking God or whoever is listening for an increase in capacity…in ability…in might…
My hair is pink again with some blue added for extra fun. My hair and color are always my first lines of defense against the disorder of my brain chemistry and mood.
I visited my psychiatrist last week at the VA. This is another area that I can’t seem to find solid footing. We’ve lived here for nearly two years and I’m on my 3rd psychiatrist. Obtaining talk therapy has been a fail. The appointment scheduling system here is confusing and useless to me because I have very little say in what days and times fit into my schedule that’s already inundated with the kid’s school and therapies. I’ve had to fight to get treated, and I’m constantly having to say “but if you read this and go here, research and experts agree that….”. I feel lost in a system that I’m constantly told is for me to use and that I should trust. But the bureaucracy I face with nearly every interaction chips away at that trust. I have no confidence in my mental health care these days, in the professionals assigned to my care. And yet, at my appointment last week, I sat in front of her desk and allowed myself to become undone. Completely and unapologetically. I unloaded nearly 24 months of thoughts and stress right there in her office in 20 minutes while my smiling baby squirmed and cooed in my arms. She listened to every word. Asked some questions that dug a little deeper. Apologized for all the trouble with the system I’ve had and for not really hearing me 6 weeks ago when I told her my anxiety was becoming a problem. She admitted that lack of knowledge about medications while breastfeeding restricted her ability to really give me what I was needing. We decided now that I’m no longer pregnant and breastfeeding we could get more aggressive with my meds again-go back to finding a more therapeutic dose. So over the next two months I’ll be doing that-going up on lamictal and prozac and trying out an additional med for anxiety. I started the increase yesterday. I’m hoping by the end of the week my brain and mood will start to grab ahold and adjust accordingly.
I’ve struggled today to pick everything back up and keep walking. To push past and through. To square my shoulders and lift my chin. To turn a deaf ear to the tape playing in my head that has all kinds of lies and frenzied talk on a loop.
But I’m doing it-picking up and pushing. I’m moving forward. Slowly. The sun is shining outside despite the cold front that’s moved through. I’m working my way out into the sun, breathing in deep as I go.
I just need to get this out because it’s burning hot in my bones like fire, my soul wants to just scream and wail but it can’t because doing so will terrify my children.
I’ve been thinking all day about how we’ve lost another person, another woman of color to suicide and mental illness. The more I’ve thought about how we lost Karyn Washington to suicide, the angrier I get. I’m talking SEETHING. I’m talking a white-hot, blinding rage that just wants to go tearing through things as it travails in mourning. I’m talking a rage that causes my teeth to ache from a clenched jaw and gnashing.
I. am. ANGRY.
I. am. MOURNING.
I. am. HEARTBROKEN.
I didn’t know her, but I didn’t have to. She was my sister, a fellow woman of color, a writer, a voice, a human being dedicated to uplifting her people. And she is gone. Suicide came and took her from us and I’m here grieving like she was my own daughter gone from me.
I’m fed up with the stigma that permeates minority communities and takes the lives of our people-as if we already don’t have enough fucking things that are killing and destroying us. I’m enraged at the lack of resources available to us. Our people are living and suffering from all types of ‘hood trauma all across this country, and have been for decades, centuries, even and our mental health isn’t taken seriously and addressed.
Our people are left for dead and to waste away in their minds.
Our churches-the cornerstones in our communities don’t adequately address mental illness-we keep perpetuating this “I’m too blessed to be stressed” bootstrappin bullshit that’s basically the equivalent to handing us a razor to slice our wrists open with.
Black men are conditioned to believe they have to be hard, and in reality, it’s true-they MUST be and live hard because society views them as inhuman and unworthy of even being able to walk to the corner store or listen to music in their cars in peace.
Black women are conditioned to bear a resilient silence-our mothers, sisters, aunts, cousins, and grandmothers have to be so strong for everyone else without a not so much of an utterance as to how such a burden is eroding at our thought life and well-being.
I’m disgusted that the mental health advocate community has a major diversity problem. I’m tired of POC not being seen and heard on mental health platforms like our white counterparts. I’m tired of seeing awareness campaigns full of nothing but white faces, and quality treatment facilities and practices in the white neighborhoods, with even sliding scale fees only white people can afford.
I’m tired of hearing our people say that therapy and medication “are for white people.” I’m tired of our mamas not knowing what perinatal mood and anxiety disorders are and how they can manifest over the first year of their baby’s life-ON TOP of all the other shit they’re dealing with that can contribute to depression, PTSD, and anxiety. I’m tired of our mamas not knowing the risk factors for developing such disorders during and following pregnancy-especially when previous trauma and violence are the top risk factors.
My heart bleeds for the Karyns. The Miriams. The Ebony Wilkersons. The Don Cornelius’. The Lee Thompson Youngs. My heart rages for them, and I wonder when their mental health will become a priority. When will the psychiatrist or licensed social worker graduating from school decide to go set up shop where our people live and listen to their stories. Educate us. Chip away at the stigma that has become a death sentence?
Who will help us? People of color, when will we speak up about our own struggles with mental illness and light the way for our own? Can it be today?
Please tell me we can start today. I can’t bear the pain of losing any more of you to this selfish son of bitch.
If you are struggling today and having thoughts of suicide, please DO NOT hesitate to call your local suicide hotline immediately. Call 800-SUICIDE (800-784-2433) or 800-273-TALK (800-273-8255) .
One of the writing communities I’m a part of holds weekly write-ins via video conference. While I’ve been a member of this community since early last year, tonight was my first time participating in one as it was happening. By the time I joined the conference, everyone was reading their responses to the first prompt “When do you feel heard?”, and blowing. my. mind. like. WHOA.
We were given 30 minutes for our 2nd prompt and here’s what I finally word vomited after wanting to throw my paper, pen, and laptop out my back door.
Prompt: “Show Me Your Brave”
I hold them in the palm of my hand never knowing if they’ll be enough to keep me through the next 24 hours. I stare at them intently, as if my gaze alone can make it so that they do. I tilt my head back, close my eyes, and pause as this unknowing whispers my own doubts back to me, louder than the why I must in spite of. It’s in this nanosecond of a moment that fear always roars its loudest, reminding me of what exists within, and its capacity for destruction. I feel the darkness, I smell the fire, I hear the frantic call of madness, the hollow wail of despair and I wonder if 150mg is enough for 24 more hours. My hands shake as I swallow each one and bring the cup to my lips to further assist them on their way down.
It’s the only way to find out.
*to learn more about The Story Unfolding & Story Sessions writing community, click here*
My head and heart have been reeling since your death. Upon seeing your picture and hearing details emerge about your struggles mentally and hospitalization, I sat crumpled in my bathroom, sobbing for you, your daughter, and for myself.
You see, I saw your face, your brown skin, and I saw a reflection of myself-a mother battling a mental illness. Having lived in the darkness of postpartum depression I know the hopelessness, fear, confusion, and pain that consumes you from the inside out. Although I’ve never experienced psychosis, I have and do experience the chaos, scattered and fragmented thoughts, paranoia, and such that comes at times with having bipolar disorder. I know that my having such a mood disorder puts me at a much more significant risk of psychosis postpartum, and that terrifies me. Like you, I’ve been hospitalized, trapped in my own mind, wandering the halls and monotony of the psych ward, getting help, but also wanting OUT and have some sense of normalcy back…whatever’s left of it in your life at least. I know how triggering and taxing an unplanned pregnancy can be on your psyche, even when you’ve accepted and embraced the new life growing within you. I know the disconnect you can feel once you’re holding that new life in your arms minutes after delivery and long after you’ve been sent home. I know how difficult those first few months can be, and even that first year. And I know what it’s like to need help, be in treatment, but not have anyone you can really talk to about it, no one who “gets” the upheaval your mind and well-being is in. I know what it’s like to have to make a conscious choice to fight for your life daily, and being too tired to make that choice most days. I know the stigma that comes with being sick, and taking medications. I know side effects and having to rely on meds is exhausting and at times can chip away at your feelings of self-worth, and leave you doubting your capabilities to mother, to accomplish goals and dreams…to LIVE.
I know all of these things and that is why I sat in my bathroom crying for you…for me…for your daughter, and for my unborn son squirming in my belly.
After my tears came questions: were you getting help after your hospitalization? Were your boyfriend, mother, and sisters supportive? Did they encourage you to stick with treatment-were they themselves educated on your meds and illnesses? Did you have a therapist and adequate access to other mental health resources? Did you have anyone, ANYONE to talk to? Were you afraid to talk to anyone? Were you compliant in your treatment? Did you decide to stop treatment because you figured you could do it on your own, or were you pressured to by those around you? Did anyone tell you the dangers of quitting meds cold turkey or talk to you about weaning? Were you given speeches about bootstraps and soldiering on? Did your doctor think you were getting better and miss something? Were you even properly diagnosed and given the right kind of treatment? What led you to DC that day? WHAT HAPPENED?
I know that because you are no longer with us to tell your story, we won’t ever really have the answers to these questions-we won’t ever know the full truth. My heart aches with this knowledge. My heart breaks that the events that took place unfolded the way that they did and that your life was taken.
Since your death I’ve seen lots of discussion in the media about the state of your mental health, and lots of misinformation and a lack of distinction between postpartum depression and postpartum psychosis, which is what it appears to be that you suffered from. I’ve seen anger and outrage over how the police responded to your actions, and calls for an investigation on their use of force policy. I’ve seen what happened to you become politicized and I’ve seen people make ugly, disgusting comments about you, a woman they’ve never met.
I’ve seen all of this and all I can think about is your precious daughter. When I do anger wells up in me and boils, but not for any of the reasons I see it embodying others. My anger is with our community, with our people. I’m angry that within the black community there is no focus placed on our mental well-being and on mental illness. We fight to quell violence and hardship in our communities but do little to nothing to fight for resources that can help us deal with the mental impact violence, abuse, and hardship has on us. We don’t talk to our children about mental illness, other than to point to “Crazy Ray” who lives down the street and further cement stigma about mental illness in their minds. We are misinformed and uneducated. We are ignorant. We think therapy and medications are for whites only. We are held hostage by a code of silence that throughout our history has kept us safe and helped us survived but is now killing us. Our churches tell us to pray more, have more faith, live right, strive for prosperity…but say nothing about the mental illness that is often quietly sitting amongst us in our congregations.
We will fight for Trayvon and for our black boys. We will march against those who believe it’s better to close our schools and build more prisons. We will rage at police brutality and systemic racism across the board. But when it comes to our mental health and the facts on mental illness we are cold…silent…apathetic…hushed…disbelieving and ignorant of the science and biological roots of mental illness and how vital a role environmental factors play in the manifestation of illnesses like depression, anxiety, bipolar disorder, and schizophrenia.
Our national black leaders and organizations speak little on this issue and make no demands for change. I would go as far as to say it’s not even on their radar or list of priorities. Narratives and dialogue on mental health in our communities is driven and dominated mostly by white advocates. Those of us who live with mental illness and choose to face the stigma within our community and society at large often aren’t given the same platforms and amplification as white advocates. Our outrage and concern for other issues drown out suicide prevention and mental health awareness. Campaigns and efforts are not targeted at us, in OB offices we don’t see our faces on pamphlets on PPD or other perinatal mood disorders, and our doctors rarely screen us effectively for it. Medicaid provisions often keep our single mothers from being able to get adequate treatment and access to resources on the mental health front. (I speak from experience)
All of this…has me angry. Has me raging on the inside, and pushes me to do more with the space I have here. As a woman and mother of color with bipolar disorder who has survived PPD, I look at you, your daughter, and what happened, and the role mental illness probably played in this, and I rage and I feel a responsibility. To your memory and most importantly to your daughter I feel an obligation to do more, say more, fight for better within our community. Others can rage and decry the actions of the police if that’s what the feel is important. I will rage and decry the lack of education and honest dialogue about mental illness on a national level and within our own community. I will rage and push for you so that your daughter and other women of color get educated and aren’t ashamed to get help. I will rage against the “strong black woman” archetype that keeps so many of us from acknowledging we need help and treatment on this front. I will speak up, I will fight, I will advocate for you so that your death will not have been in vain.
I will do this because I know, Miriam, what it’s like to be touched by madness and struggle to survive in its death grip. I will do this because your story and your death have shown me that its past time we rise up, get real, and take responsibility for our mental health….and take action.
I will step up Miriam. I will continue to speak in the vacuum until our stories and experiences with mental illness are heard and taken seriously instead of dismissed or trivialized.
I’m so sorry we lost you. I’m so sorry you lost yourself. I’m so sorry your daughter will no longer have you. I’m sorry we couldn’t do better by you both. But know that now? We will.
It’s okay to have a mental illness…
…to need medication, even more than one, to manage it.
….to see a therapist for it.
…..to feel weak for having such shitty brain chemistry.
….to hate it for the impact it has on you, your relationships, your quality of life, your self-esteem, your perception of yourself and your worth.
….to be grateful for it for what it has taught you about yourself, your limits, your capabilities, your strengths…and for how it’s changed you.
…..to be scared because you have it, and to worry about everything that comes with it from the stigma it carries to the side effects of the medications you take.
….to be a parent with one. To want to have children, and have one, or many, despite living with one.
…..to take the safest medications possible for it during pregnancy and breastfeeding if that’s a choice you and your psychiatrist make.
….to be jealous of those who don’t have one, of their “normal” states.
…..to be resentful of your spouse because they don’t understand what it’s like for you to live with it daily.
…..to hurt for your spouse or loved one because you know what it’s like to live with it daily and you wish you could shield them from that part of you, spare them from seeing how deep your darkness can go or how high your brain can fly, and spare them the hurt the difficulty and weight of how heavy and distressing it can be to witness.
…..to love your spouse or loved one for standing by you as you manage the ups and downs, the nuances, the cracks and crevices of it.
….to be honest with your kids about it.
….to be yourself, to live your life fully, to create the life you want to live despite having it.
……to not let it define you.
……to embrace the parts of it that can help you grow, and learn, and empathize.
…….to feel strong because of it.
……to love yourself in spite of it.
It’s okay to have a mental illness. Don’t let anyone shame you for it. Don’t let stigma keep you silent and held hostage by it. It’s okay. As hard as it is, as dark as it can get, it doesn’t diminish who you are or what you’re capable of. It’s okay. It’s not your fault. Ever.
So take a deep, full breath, and say it out loud: “It’s okay.”
I am a Warrior Mom.
I have sat in the darkness of postpartum depression and anxiety feeling hopeless and lost. I have felt them rip my identity as a mother and a woman apart, leaving me feeling like a shell of a person, empty.
I’ve hid in closets, and cried on my bathroom floor because being near my children felt impossible to handle.
I’ve endured thoughts so intrusive I still can’t speak of them to anyone, let alone myself.
I lived with guilt over my inabilities to play, laugh, and hold my children-it feasted on my insides for months….and still comes back for more when I find myself on the low end of the bipolar mood spectrum.
I still live with shame over the rage that engulfed me for over a year, often over the trivialest things, in the most unexpected of moments. The screaming, the yelling…If there’s one part of my experience I wish I could erase it would be that.
And yet, in spite of the darkness I lived in after Alex’s birth, despite how sick I was, I survived. With support and treatment I overcame. I climbed out of that darkness. I became a Warrior Mom.
Tomorrow, I’m celebrating that accomplishment with over 100 other women across the United States and in 6 other countries.
My family and I will be heading to Wild Basin Wilderness Preserve here in Austin for a 2 mile trail hike. With each step I’m sure I’ll be emotional as I look at my boys and my husband around me and reflect on my experience with PPD…and I’ll again be overwhelmed with gratitude for Postpartum Progress and Katherine Stone.
If you’ve been a reader for any amount of time here, you know how much I credit Postpartum Progress and Katherine Stone with essentially saving my life and helping me come into my own as a mother. In January 2011, it was THE lifeline I needed that started to pull me out of the darkness of PPD & anxiety and eventually led to my diagnosis of bipolar disorder. You can read more about how Postpartum Progress helped me here and at the end of this post if you haven’t already.
3 weeks ago I joined fellow survivors and even those still fighting PPD in a campaign to raise funds for two very specific projects Postpartum Progress is working on. In those 3 weeks, we’ve managed to raise over 36K, and basically create a movement to honor our experience and give hope to others still finding their way out of the darkness Postpartum Progress helped us come out of.
We are Warrior Moms. We are climbing out and pulling others up with us today, the longest day of the year, to stand tall in the light of hope. I’m honored and humbled to be a part of something so significant with the most amazing women I’ve met in my life.
Let’s do this.
To learn more about Climb Out of the Darkness, what the donations are funding, and to donate to our hike on Saturday click here
Sorry I haven’t stopped by here since May 20th. Life’s been pretty consuming as of late, and I’m not as good about writing my way through periods like this as I was a year ago. Things are busy busy busy and I’ll be honest-sitting down to write has proved to be more difficult than I would like it to be. The words are there, waiting to be given life, the stories are stacked up on shelves in my brain, the desire is there, but it all just becomes a jumbled mess when I sit down to type or even write in my journal.
Part of it is because my brain is so scattered, thanks to my disorder and my recent hypomanic episodes and cycling. Part of it is because I become to preoccupied by my compulsions to clean, organize, and rearrange everything in our apartment. Part of it is because I’m fatigued and the energy I do have is poured into being pregnant, mama, wife, housekeeper, cook, errand runner…the desire to create or give anything back to myself lingers quietly in folds of my heart, but never finds its way to execution. My mind is scattered and my hands feel inadequate, empty, unable to form the words or images that are mixed in the chaos.
Part of it is because I’ve become completely immersed in a new parenting approach with Alex and in implementing new routines and techniques I hope make like easier for him…and for all of us, really. I’m seeing how different and significant some of his needs are and in a lot of ways re-learning this whole parenting thing. From how I discipline, to the words and tone I use when speaking to him, to even how much pressure I apply when I touch or hug him, my whole posture towards parenting and mothering him has changed. Most of my days are consumed with being engaged with him in ways I wasn’t before. Learning about sensory processing disorder, autism, and what we’re learning from his therapists since April has given me new ways to engage and interact with him that are different from how I did before. It’s been quite the learning curve-there’s so much more to be aware of these days! I’m more watchful, taking note of the slightest change in attitude or behavior (positive or negative), more apprehensive and mindful about how changes in routine, however slight, will impact him from moment to moment. In some ways I feel like I’m on high alert from the time he wakes up until he finally falls asleep after I’ve put him back in his bed and given him a deep pressure squeeze for the fifth or sixth time. I’ve had to become much more patient, learning to move at his pace, and how to move him along faster in a way that he can understand when we’re short on time. I’ve found that all of this has taken an energy that I, especially being pregnant, barely have the reserves for. The simplest things from washing his hands to getting dressed to helping desensitize his facial muscles before his speech therapy sessions is all a process; exhausting and consuming, but one I’m committed to helping all of us navigate and learn as best we can.
Part of it is because I’m committed to being well during this pregnancy and am forcing myself to focus on self-care. This becomes increasingly difficult when pregnancy is kicking my ass, particularly when migraines attack, and my blood pressure is low. The migraines have been pretty frequent this pregnancy; during a good week I only get one, during my worst I’ve had them for 4 days straight. Functioning when I’m a wreck physically feels impossible, but I somehow get through making sure the kids have what they need for the day and that’s about it. Aside from eating and taking my medications, taking care of myself takes a backseat and I have to fight to make things like taking a shower, combing my hair, getting in any kind of exercise or leisure activity a priority. Overall I’m doing better on the self-care front than I have in the past, especially during my last pregnancy.
All of this focus on concentration on these other areas of my life leave little for my writing here and painting….advocating even. I had all of these plans for my creative pursuits this year but the mental and creative bandwidth I need to execute them isn’t what I’d like it to be. For some reason I can’t seem to find space for those two to fit in my life as of late and this does sadden me. Frustrates me. Leaves me to wonder how I’ll fit them in when there are THREE children to give my time and attention to. I’m hoping I can find a way….I’m in awe of those who’ve found a way to balance and navigate it all.
At any rate, while I find it hard to write and paint these days, I have found it easy to keep up with vlogging-probably because I can just do it on my phone while I’m on the go and have a few minutes alone. So I think that’s just what I’m going to have to do for now because it’s the one thing that I can keep up with that fits in best with everything else. It’s the one thing I feel I can keep up with right now on this front. I’m hoping to write here during the summer, but know that if you don’t see me here, you’ll be able to find me on my YouTube channel, addyeBeesWorld, where I’ll mostly be sharing the nitty-gritty of navigating bipolar disorder while being a pregnant mama. Feel free to watch and subscribe-I’ve done videos for weeks 15, 16, and 17 so far (I tell you what we’re having in my second video for week 16!) And of course, I’ll always be on Twitter :) (@addyeB)
So that’s where I’ve been, what I’ve been up to, what’s going on. I’m still here…I’m just consumed is all.
Maybe I just need to Lean In…anyone have Sheryl Sandberg’s number?
I decided to take “My Bipolar Life” in a new direction and turn it into a video diary of sorts for this pregnancy.
As with my other videos, this one goes against all vlogging rules-it’s just me, talking, unscripted. I hope you don’t mind the lack of editing, the “ums” and my losing my train of thought at times :)
My goal is to do at least one of these a week. There might be more-just depends on what’s going on, if I have some thoughts I want to share, where I’m at mentally, etc. Hold me accountable? Oh and subscribe? Thanks.
It’s been a long week. It’s kicked my ass, but rest assured I’ve been fighting back. Monday, as you know, I learned that the VA (the Central TX VA healthcare system in particular) does not provide psychiatric treatment for women … Continue reading